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How cautious is your allergist?

We havent had the best experience with any of DSs doctors- pediatrician, dermatologist, or allergist. We just finally saw an allergist for the first time last November. Pediatrician didnt recommend us to one despite the fact that DS has MFAs because he thought we (he?) could handle it.
The allergist hasnt been much more help. I suspect that DS is allergic to berries and kiwi in addition to his other allergies. Also he reacts to Desitin/ Balmex, Gatorade, Sodas (not that we allow him to have them), and some other things. Recently weve started to suspect Barley. Hes had hives from all of these except barley- GI symptoms and eczema. Our allergist didnt want to test for anything more than what hes already been + for plus nuts. He says hes just likely to outgrow them and testing for more would be overkill. I argued him on the subject and thats how we got nuts tested for (- luckily, although never previously introduced or in our house.) So now I have a long list of things that we avoid even though we are not sure if hes allergic to them or not.
The first time we went to see Allergist I told him what we had removed from our house due to DSs sensitivity of having around- sesame, wheat, and eggs. No peanut in home either. He told us that there was no reason that we would have to change the entire familys diet for DSs allergies and that we could bring some of these items back into the house. Of course we didnt, we removed them for a reason. At this point Im convinced he really did think that I was an over-reacting Mom. After the skin test though he had an entirely different attitude. He said that given DSs sensitivity to certain foods, especially wheat, that we were right to remove them and that we should consider not putting him in daycare, even brought up kindergarden (DS is 1). However he still doesnt want to test for the other foods.
Were moving soon though so hopefully our next allergist can be a little more helpful.
IMO I dont think people skills is a requirement when it comes to allergists. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

I am now not too impressed with DDs allergist.

When we first saw him, 13 years ago,when DD was 7, for environmental allergies, I felt he was good. At the next appointment,a year later, we mentioned the itchy throat to raw fruits and vegetables and to certain nuts. He tested, for what nuts, I dont know, and she came up positive to almonds and hazelnuts.

Avoid those nuts, was his advice, he did give us epi prescription and said to get DD a medic alert bracelet.

A little over a year ago, DD started reacting to peanuts. The allergist tested for peanuts, and a few other nuts. Positive to peanuts, and a couple of other nuts. Again, he said to avoid only those.

A couple of weeks later, we were back, I wanted the rest of the nuts tested, after a reaction to macadamia nuts. More positive tests, and NOW he says to avoid them all.

He is well enough known in our city, shares office space and writes papers with one of the more well-known childrens allergists here. I was surprised at the fairly uncautious attitude he has. Sort of a if they bother you, dont eat them kind of thing.

Of course, the last 2 appointments, DD went in alone at the beginning, she was 18, so I only got to talk to him at the end, and mostly because I insisted on asking MY questions. DD still lives at home, and I wanted to know what was going on.

We are lucky because our allergist has TONS Of allergies and is crazier than we are so he has TONS of information and really loves to talk.

He usually sticks around for a bit Q & A during a visit.

Peg

Peg, youre so funny: hes crazier than you are! Sounds like youve got a good one who understands it personally.

Funny. He loves the sound of his own voice and considers himself a great teacher so I just go along with it and ask ask ask. We hardly see him now but hes been helpful.

Of course when he diagnosed DS so many years ago (17 years ago!) he did not talk about epi or anything and it took more than a year for me to understand how serious this was, from my own research.

Peg

My sons allergist is very caucious. My sons school nurse knows his drill which makes me feel more comfortable about him being in school.

My allergist (who is nice - but that doesnt mean anything) thinks Im not allergic to peanuts. I showed a light allergy to them and he tries to tell me I probably reacted to a different nut (which at that time I wasnt reacting to them). Now Im allergic to tree nuts. I know Im allergic to peanuts because I feel like Im choking after I ate peanuts from the shell, peanut butter, etc. I have also become more sensitive to may contains. I dont care how low my test is I am avoiding and dont care to know how low or high my # is. He also doesnt believe Im allergic to bitter greens (could be arugula or something else they put in these types of salad). He thinks it was the walnuts (which then I was not allergic to - I ate them in chocolates and out of the shell with no problems why would I react to them in salad and not other times? And I ate this type of salad another time w/o nuts and tried to eat around what I thought was arugula and I still reacted. My tongue swells and my lips swelled. They cant test for salad greens. This kind of upsets me and even though he knows Im a highly allergic individual he tells me that he can see Im a nervous person. Im highly allergic to seasonal allergies and also severe to shellfish. Im a 4+ to trees, grass, mold, ragweed so I break out in hives and my throat starts to close up. Gee, why am I so nervous. Sometimes I want to see another doctor but I know what to avoid and when I go back I may ask to see his partner who is a really good doctor.

I also told him I was allergic to aspartame and he gave me some free samples of fastmelt antihistamines (they contained aspartame). I have MFA (too many to list) and I understand that even a doctor who reads my chart can forget some of the things by the time he is done reading the list.

I just go for epi-pen prescriptions. Hes close to a hospital too incase something were to happen.

[This message has been edited by momll70 (edited February 22, 2007).]

Quote:Originally posted by lmw:
[b]I am now not too impressed with DDs allergist.

When we first saw him, 13 years ago,when DD was 7, for environmental allergies, I felt he was good. At the next appointment,a year later, we mentioned the itchy throat to raw fruits and vegetables and to certain nuts. He tested, for what nuts, I dont know, and she came up positive to almonds and hazelnuts.

[/b]

itching to raw fruits and vegetables can be cross reactivity where if you are allergic to certain pollens, certain vegetables and fruits cause reactions.
Im actually looking into this b/c lately my son has had some trouble with certain fruits.
Here is a small chart I found. Allergist had three pages of cross reactive foods the other day. it is also called oral allergy syndrome.
Pollen
Potential Cross-reactive Foods

Ragweed Bananas, melons (watermelon, cantaloupe, honeydew) zucchini, cucumber, dandelions, chamomile tea

Birch Apples, pears, peaches, apricots, cherries, plums, nectarines, prunes, kiwi, carrots, celery, potatoes, peppers, fennel, parsley, coriander, parsnips, hazelnuts, almonds, walnuts

Grass Peaches, celery, melons, tomatoes, oranges
Mugwort Celery, apple, kiwi, peanut, fennel, carrots, parsley, coriander, sunflower, peppers
Alder Celery, pears, apples, almonds, cherries, hazelnuts, peaches, parsley

Latex Bananas, avocado, kiwi, chestnut, papaya

[This message has been edited by saknjmom (edited April 01, 2007).]