does anyone have Celiac Disease & PNA?

Posted on: Sun, 12/31/2006 - 11:01am
KIMMO's picture
Joined: 11/04/2006 - 09:00

Most of you know my situation. I've had reactions to PN & TN, but I've tested negative for both on SPT & RAST test. I had also tested neg. to wheat, soy, milk & eggs.
I've done quite a bit of research on CD, but I can't find much for info on allergy symptoms & CD.
I was just wondering if anyone on here has CD & PA, or just CD? I'm still having reactions to nuts & nut contamination, in my opinion.

Thanks for any info.

Posted on: Sun, 12/31/2006 - 12:14pm
starlight's picture
Joined: 01/16/2004 - 09:00

Off the top of my head, using the search function, search for "celiac" with the usernames krasota and LisaM (you'll have to do two seperate searches because I don't think you can search for 2 usernames at once). I'm pretty sure they both have celiac, and have posted about it in the past [img][/img]
I know you've been having a hard time of it recently, I hope 2007 goes better for you than 2006.

Posted on: Mon, 01/01/2007 - 1:27am
Naer74's picture
Joined: 11/03/2003 - 09:00

I have one son with PA & TNA and one son with CD. However, not the same kid with both.

Posted on: Mon, 01/01/2007 - 3:02am
LisaM's picture
Joined: 11/04/2005 - 09:00

Hi, yes, I recently found out that I have celiac. I didn't end up going through with the biopsy . . . but I had a positive blood test (and one negative) when nearly gluten free. After going back on gluten (in preparation for the biopsy which we ended up cancelling after all) the blood tests were more positive.
I don't have severe symptoms with gluten-containing grains . . . but I can definitely tell I'm reacting. Oats, rye, barley, and especially wheat make me feel tired + cause some GI issues. I get hives with wheat sometimes . . . but that is related to my wheat allergy. In the days when I was eating a lot of wheat, I used to eat *a lot* and have to eat frequently.
If you want to get tested, it is important to avoid going gluten free beforehand----I've heard that going even partially gluten free can cause false negatives.
There are so many different symptoms associated with celiac that it is sometimes hard to tell without either being tested or attempting the gluten free diet.
Here are a couple of websites that I've found really helpful:
Doctors are often uninformed about celiac disease---it might be helpful to print some of this info. off. Some common misconceptions include:
--not realizing that the full celiac panel should be ordered for testing purposes; believing that people who are overweight can't possibly have celiac disease (*not* true)
--believing that celiac disease is "rare" (recent studies show that 1 in 133 Americans have celiac disease. Most people with the disease are asymptomatic)
--not relizing that the tests aren't reliable if the patient is on a gluten free diet (!!!!)
[This message has been edited by LisaM (edited January 01, 2007).]

Posted on: Mon, 01/01/2007 - 12:22pm
KIMMO's picture
Joined: 11/04/2006 - 09:00

thanks for all of the info. Lisa M. what were your symptoms exactly with CD. I'll check out the links that you posted.

Posted on: Tue, 01/02/2007 - 1:28am
beachfan's picture
Joined: 02/15/2006 - 09:00

My child is either CD or gluten intolerant, and wheat allergy and peanut allergy. The biopsy was useless because of not being on gluten long enough prior to biopsy, so we don't know. I agree with above post, go back on gluten for at least a couple of months prior to biopsy, I questioned the doctor's nurse prior to biopsy, stating everything I'd read said a week is not sufficient, his nurse said it's ok, just go off for a week, and it wasn't ok, so now we have no idea. I do know my child feels much better being off gluten. We avoid it completely, let me know if you have any questions, need recipes, happy to help.

Posted on: Tue, 01/02/2007 - 3:03am
KIMMO's picture
Joined: 11/04/2006 - 09:00

Hi, beachfan. I would love some info. For right now I was going to still eat gluten as I have been. I'm just avoiding all nuts. My excema on my hands seems to be improving, so I'm just not sure if it's because I've been very diligent about abstaining from nuts, or if we've had a warmer winter which could've helped my skin.
What symptoms did your child have from cd? I'm not sure if I've actually had symptoms of cd & just didnt' realize it. I've always had irregular periods.
I would love recipies also. I hope that the dr. can figure out what's going on with my body.
Thanks for your help.

Posted on: Tue, 01/02/2007 - 11:13am
LisaM's picture
Joined: 11/04/2005 - 09:00

Quote:Originally posted by KIMMO:
[b]Lisa M. what were your symptoms exactly with CD.[/b]
Mainly tiredness, slight spaciness, and gastrointestinal issues. Let me know if you have any more questions. Good luck with figuring everything out.

Posted on: Tue, 01/02/2007 - 9:14pm
KIMMO's picture
Joined: 11/04/2006 - 09:00

Thanks, Lisa. I'm going to talk with my dr. hopefully before the end of the week. He's just finding out about lab work & the details of that.
I'm just not sure if my symptoms really match cd's symptoms, but I also understand that some people don't even show any symptoms.
Thanks again.

Posted on: Wed, 01/03/2007 - 12:21am
LisaM's picture
Joined: 11/04/2005 - 09:00

I hope you get some answers from your dr. Keep us posted on how things go. I know one person who was tested by a dr. at a well known research hospital . . . that dr. only ordered the one test (EMA). In my opinion (and in the opinion of the NIH and the dr's at the centre for celiac disease research at Columbia University) it is important to order both the anti-tTG test and the EMA. The EMA is more specific
(i.e. if it is positive it almost definitely means celiac disease) but less sensitive (more room for false negatives). My dr. also ordered the antigliadin test which is automatically included in the celiac panel, I think. I've also heard that they are supposed to test for IgA because if you have an IgA deficiency it could mess up the test results . . . I'm not entirely sure if I got that right, though. (one of those sites I posted probably has info. on this.)

Posted on: Wed, 01/03/2007 - 2:36am
krasota's picture
Joined: 04/24/2000 - 09:00

I have both. There's a strong possibility most of my food allergies were caused by the gut damage of CD, but we'll never know. My PA seems to be secondary to my ultra-nasty soy allergy. I can tolerate peanut oil and don't need to worry about peanut cross-contamination.
My symptoms for gluten include gluten ataxia (which includes just about any symptom in the MS diagnosis list), overwhelming fatigue (CFIDS, currently in remission), IBS-D, fatty orange stools, itchy rashes, psoriasis flare-ups, joint pain, vitamin/mineral deficiencies, etc.
Most of those symptoms are no longer present, thanks to a strict GF diet. And testing for CD wasn't accurate for me, due to many reasons. Thanks to the development of an IgE wheat allergy, I couldn't pursue testing via endoscopy.


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